Sunday, April 7, 2013

HAWMC Day 4 – Sharing Resources

When my daughter was first diagnosed with each of her conditions – asthma, allergies (food and environmental) and eczema, I searched for communities that could offer insight, support, advocacy and resources.  Food Allergy and Anaphylaxis Network – which is now known as Food Allergy and Research Education is the first organization I joined as a member and I attended their annual conference  in Baltimore, Md.  Food allergy conferences can be a good opportunity to meet like-minded advocates who share your journey and you get to learn about more resources, research updates and best practices.  The cooking demonstrations are an added bonus!
Other helpful links:  
Allergy Eats- a peer-reviewed directory of restaurants that help consumers identify (and review) restaurants that best meet their food allergy needs.  

Auvi-Q  and EpiPentreats life-threatening allergic reactions (anaphylaxis)  for those at risk or have a history of these reactions.  Also check out the MyEpiPen app where profiles can be shared with caregivers.


    Learn how to use an epi-pen and share profiles about your allergies to caregivers   (Photo Courtesy: Dey Pharma) 


Kids with Food Allergies recently announced it will become a division of the Asthma and Allergy Foundation of America. Both organizations provide all levels of support, advocacy and individual services for those with allergy-related conditions.
Local resources in the Maryland, D.C. and Northern Virginia area:
One Dish Cuisine – chef/owner, Maureen Burke serves up safe foods free of allergens and gluten. With a personal understanding about celiac disease and autism, the local Ellicott City café serves food onsite and provides allergen free food to local hospitals and assisted living centers.
Loudoun Allergy Network   (Northern Virginia) provides advocacy and support for those managing food allergies and anaphylaxis, including school and social strategies.


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